On the situation of Multiple Sclerosis Patients in Baden-Wuerttemberg

Medical support and other technical care: medical care received and treatments as well as designation of the specialists taken advantage of for this; most important and most helpful treatment measures; general satisfaction with medical support. 5. Attitude to housing and nursing homes as well as particular facilities for MS-patients: judgement on the structuring of one´s own residence appropriate for the illness; preferred accomodation in one´s own family or in special nursing care homes; desired housing opportunity for a short stay outside of one´s own residence; importance of such a short stay; adequate meaningful activities; extent to which informed about the illness and information problems (scale); judgement on the importance of consultation possibilities and preferred topics for a consultation conversation; preferred public measures to improve the situation of MS-patients. 6.

Human problems and difficulties: detailed recording of the psychological problems in connection with restrictions arising from the illness; most difficult family problems in connection with the illness; socially desired response behavior (short scale); most important psychological help to accept one´s own illness; advice to other MS-patients to come to grips with their situation. 7. Miscellaneous: filling out the questionnaire oneself; degree of relationship to the person helping with filling it out; physical effort in filling out the questionnaire; self-assessment of willingness to cooperate.

Women were also asked: influence of a pregnancy on the course of the illness.