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Data · dataset · 2026

Exploring the experiences of people living with dementia in dementia friendly communities in Northern Ireland: a realist evaluation.

Listed in ZivaHub and Deakin Research Online and DMU Figshare — shown once because both records carry DOI 10.17034/32641149.v1

A dementia-friendly community (DFC) is a geographically defined area where people with dementia are acknowledged, respected, supported, and empowered to participate actively in society.

Description

While over 200 organisations in Northern Ireland (NI) recognised as dementia-friendly, limited understanding exists about how these communities function to achieve their intended outcomes, such as social inclusion, quality of life and increased dementia awareness.<br><br>Aim:<br>This study exploered the lived experiences of people living with dementia in geographical DFCs and identified factors that empower and support them in these settings.<br><br>Theoretical Framework:<br>The study used realist evaluation(RE), a theory-driven methodology suitable for assessing complex social interventions like DFCs.

Unlike traditional models, RE examines what works, for who, under what circumstances, and to what extent.<br><br>Methods:<br>A four-stage RE approach was employed. Stage 1 a realist literature review to establish initial context-mechanism- outcome (CMO) configurations. Stage 2 collected data in three phases: non-participant observations (n=10), semi-structured interviews with people with dementia and caregivers (n=10), and focus groups with caregivers and DFC staff (n=21).

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Stage 3 refined the CMO configurations, and Stage 4 synthesised findings into final programme theory. <br><br>Results:<br>The study identified key themes influencing DFC effectiveness: physical and sensory environments, interpersonal interactions, social support, community engagement, geographical context, public perceptions, barriers, staff attitudes, co-design, intergenerational efforts, training, funding, and organisational commitment.

These factors were integrated into a refined programme theory supporting DFC design and evaluation.<br><br>Conclusion:<br>The study contributes a context-sensitive programme theory for DFCs based on the experiences of people with dementia in NI. The findings offer practical guidance for stakeholders aiming to create inclusive communities that enhance the lives of people living with dementia.<br><br><i>Thesis is embargoed until 31 July 2028.</i><br>

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Provenance · 3 source records, 8 field assertions
SourceKeyLast seenRaw
ZivaHuboai:figshare.com:article/3264114913 d agoJSON v1
Deakin Research Onlineoai:figshare.com:article/3264114913 d agoJSON v1
DMU Figshareoai:figshare.com:article/3264114913 d agoJSON v1
FieldAssertionExtractorEvidence
access_levelsource · zivahub uct ac zaconnector:zivahub_uct_ac_za@1.0.0
concepts[field].local:field:earth-environmentalmapping · figshare dmu ac ukconnector:figshare_dmu_ac_uk@1.0.0
concepts[field].local:field:earth-environmentalmapping · zivahub uct ac zaconnector:zivahub_uct_ac_za@1.0.0
concepts[field].local:field:earth-environmentalmapping · dro deakin edu auconnector:dro_deakin_edu_au@1.0.0
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