Table · dataset · 2026
Care and services for children with cerebral visual impairment – barriers, facilitators and experiences: a mixed-methods systematic review
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Description
<p>To examine the experiences of patients and/or caregivers of care/services for children with cerebral visual impairment (CVI), as well as the barriers and facilitators to access and delivery of care/services for children with CVI.</p> <p>A systematic review of mixed-methods studies reporting patient and/or caregiver experiences of services, impact on quality of life, and barriers/facilitators to care and services, for children with CVI.
Database searches (to July 2026), a call for evidence and quality appraisal were conducted. A thematic synthesis approach was utilised, and descriptive themes were mapped onto the Capability, Opportunity and Motivation (COM-B) model and Theoretical Domains Framework.</p> <p>Included studies (<i>n</i> = 23) spanned education, healthcare and home settings and involved children, caregivers, teachers, educational specialists and healthcare professionals (<i>n</i> > 1,430).</p> <p>Key barriers and facilitators shaping the experience of families/professionals dealing with CVI were found, including fragmented services hindering coordinated care, however, collaboration across settings created supportive environments.</p> <p>This review demonstrates that challenges in CVI care and service provision are best understood as interacting behaviours and systemic determinants, rather than isolated service failures.
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A shift in approach from episodic, diagnosis-led care to more co-ordinated, functionally orientated models of care spanning education, healthcare and home contexts are required.</p> <p></p><p>Many barriers to (re)habilitation for children with cerebral visual impairment (CVI) arise at the interfaces between healthcare, education and family support.</p><p>(Re)/habilitation pathways should reduce reliance on informal family care coordination by embedding collaborative planning and information sharing.</p><p>Barriers identified reflect modifiable behavioural and organisational influences rather than the consequences of CVI.</p><p>Useful facilitators for developing models of (re)/habilitation include; timely recognition of CVI, professional understanding of functional visual needs and multidisciplinary collaboration.</p><p></p> <p>Many barriers to (re)habilitation for children with cerebral visual impairment (CVI) arise at the interfaces between healthcare, education and family support.</p> <p>(Re)/habilitation pathways should reduce reliance on informal family care coordination by embedding collaborative planning and information sharing.</p> <p>Barriers identified reflect modifiable behavioural and organisational influences rather than the consequences of CVI.</p> <p>Useful facilitators for developing models of (re)/habilitation include; timely recognition of CVI, professional understanding of functional visual needs and multidisciplinary collaboration.</p>
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Where it is published
- DOI doi.org/10.6084/m9.figshare.33844336.v1 ↗
DOI / persistent id · from figshare com
Catalogue records · 1
- OAI-PMH record api.figshare.com/v2/oai?verb=GetRecord&metadataPrefix=oai_dc&identifier=oai%3Af… ↗
metadata API · from figshare com
Topics
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- Astronomy & Astrophysics · Chemistry · Computer Science & AI · Earth & Environmental Science · Ecology · Economics & Finance · Engineering · Humanities · Infectious diseases · Life Sciences · Medicine & Health · Ocean & Atmospheric Science · Psychology & Behavioral Science · Social Science · Sociology
Provenance · 1 source records, 20 field assertions
| Source | Key | Last seen | Raw |
|---|---|---|---|
| figshare | oai:figshare.com:article/33844336 | 12 d ago | JSON v1 |
| Field | Assertion | Extractor | Evidence |
|---|---|---|---|
| access_level | source · figshare com | connector:figshare_com@1.0.0 | |
| concepts[field].anzsrc:field:320211 | mapping · figshare com | vocabulary-mapper@1.0.0 | keywords['Infectious Diseases'] |
| concepts[field].anzsrc:group:3103 | mapping · figshare com | vocabulary-mapper@1.0.0 | keywords['Ecology'] |
| concepts[field].anzsrc:group:4410 | mapping · figshare com | vocabulary-mapper@1.0.0 | keywords['Sociology'] |
| concepts[field].local:field:astronomy | mapping · figshare com | connector:figshare_com@1.0.0 | |
| concepts[field].local:field:chemistry | mapping · figshare com | connector:figshare_com@1.0.0 | |
| concepts[field].local:field:computer-science-ai | mapping · figshare com | connector:figshare_com@1.0.0 | |
| concepts[field].local:field:earth-environmental | mapping · figshare com | connector:figshare_com@1.0.0 | |
| concepts[field].local:field:economics-finance | mapping · figshare com | connector:figshare_com@1.0.0 | |
| concepts[field].local:field:engineering | mapping · figshare com | connector:figshare_com@1.0.0 | |
| concepts[field].local:field:humanities | mapping · figshare com | connector:figshare_com@1.0.0 | |
| concepts[field].local:field:life-sciences | mapping · figshare com | connector:figshare_com@1.0.0 | |
| concepts[field].local:field:medicine-health | mapping · figshare com | connector:figshare_com@1.0.0 | |
| concepts[field].local:field:ocean-atmospheric | mapping · figshare com | connector:figshare_com@1.0.0 | |
| concepts[field].local:field:psychology-behavioral | mapping · figshare com | connector:figshare_com@1.0.0 | |
| concepts[field].local:field:social-science | mapping · figshare com | connector:figshare_com@1.0.0 | |
| description | source · figshare com | connector:figshare_com@1.0.0 | /metadata/dc/description |
| license | source · figshare com | connector:figshare_com@1.0.0 | /metadata/dc/rights |
| publication_date | source · figshare com | connector:figshare_com@1.0.0 | |
| title | source · figshare com | connector:figshare_com@1.0.0 | /metadata/dc/title |