Data · dataset · 2026
Developing a core outcome set for the assessment of quality of life in hypodontia studies
Listed in ZivaHub and Deakin Research Online and DMU Figshare — shown once because both records carry DOI 10.17034/32805053.v1
Hypodontia, the congenital absence of one or more permanent teeth (excluding third molars), is a relatively common dental anomaly that often requires complex, multidisciplinary management.
Description
Treatment typically involves orthodontic, prosthodontic and surgical care coordinated over many years, often continuing into early adulthood, followed by lifelong maintenance. The condition has lasting implications for oral function and appearance, making collaborative care and timely intervention essential to achieve optimal outcomes. <br><br>The absence of permanent teeth can lead to functional, aesthetic and psychological challenges, which have been assessed using various Oral Health-related Quality of Life (OHRQOL) tools.
However, the diversity of these measures has resulted in inconsistent outcome reporting, limiting meaningful comparison between studies and reducing the overall coherence of available evidence. <br><br>This research therefore aimed to develop a Core Outcome Set (COS) for hypodontia studies assessing quality of life, following the COMET Initiative framework to promote standardisation and patient-centred research design.<br><br> Systematic and scoping reviews identified substantial variation in OHRQoL tools and outcomes.
Read the rest (3 more)
These findings informed qualitative interviews with individuals with hypodontia and focus groups with professionals, which explored key issues in management, including treatment timing, psychological support and long-term follow-up. The resulting outcomes were refined into 29 statements and evaluated in a two-round Delphi survey. Using a 70% consensus threshold and patient-centred inclusion criteria, 20 statements were accepted.
A subsequent consensus meeting resolved outstanding items, producing 23 final outcomes reflecting both professional and patient perspectives.<br><br> The final COS comprises seven Core Outcomes: three contextual factors ('Absent permanent teeth and status of primary teeth', 'Hypodontia treatment provision and timescale', 'Hypodontia treatment lifespan and maintenance') and four constituent factors ('Appearance concerns', 'Psychosocial impacts', 'Orofacial physical discomfort', 'Functional (eating) impacts').
This COS establishes the first standardised framework for measuring quality of life in hypodontia research and will support more consistent, comparable and patient-focused future studies.<br>
Links
Where it is published
- DOI doi.org/10.17034/32805053.v1 ↗
DOI / persistent id · from zivahub uct ac za
Catalogue records · 1
- OAI-PMH record api.figshare.com/v2/oai?verb=GetRecord&metadataPrefix=oai_dc&identifier=oai%3Af… ↗
metadata API · from zivahub uct ac za
Topics
Provenance · 3 source records, 7 field assertions
| Source | Key | Last seen | Raw |
|---|---|---|---|
| ZivaHub | oai:figshare.com:article/32805053 | 10 d ago | JSON v1 |
| Deakin Research Online | oai:figshare.com:article/32805053 | 10 d ago | JSON v1 |
| DMU Figshare | oai:figshare.com:article/32805053 | 10 d ago | JSON v1 |
| Field | Assertion | Extractor | Evidence |
|---|---|---|---|
| concepts[field].local:field:earth-environmental | mapping · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| concepts[field].local:field:earth-environmental | mapping · figshare dmu ac uk | connector:figshare_dmu_ac_uk@1.0.0 | |
| concepts[field].local:field:earth-environmental | mapping · dro deakin edu au | connector:dro_deakin_edu_au@1.0.0 | |
| description | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | /metadata/dc/description |
| license_text | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| publication_date | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | |
| title | source · zivahub uct ac za | connector:zivahub_uct_ac_za@1.0.0 | /metadata/dc/title |