Experiences of chest health and associated illness in children and young people with cerebral palsy: a qualitative study

Further research is required into effective, equitable neuro-respiratory care pathways, feasible outcome measures, and proactive community service models.</p> <p></p><p>Familiarity with the child’s “usual self” is central to recognising meaningful changes in chest health for children with cerebral palsy.</p><p>Clinicians/therapists should consider interacting multiple factors beyond the lungs, contributing to chest health presentations in the context of the whole child.</p><p>Improved systemised approaches to monitoring, diagnostic tools, specialist pathways, and clinical leadership are needed to strengthen chest health care across rehabilitation services.</p><p>Clinicians/therapists should challenge deficit-based assumptions of inevitable decline and highlight the need for early, proactive, and equitable chest-health care in cerebral palsy.</p><p></p> <p>Familiarity with the child’s “usual self” is central to recognising meaningful changes in chest health for children with cerebral palsy.</p> <p>Clinicians/therapists should consider interacting multiple factors beyond the lungs, contributing to chest health presentations in the context of the whole child.</p> <p>Improved systemised approaches to monitoring, diagnostic tools, specialist pathways, and clinical leadership are needed to strengthen chest health care across rehabilitation services.</p> <p>Clinicians/therapists should challenge deficit-based assumptions of inevitable decline and highlight the need for early, proactive, and equitable chest-health care in cerebral palsy.</p>