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Data · dataset · 2015

Consent, collaboration and cures: the views of rare disease patients on systems for sharing data and biospecimens

Listed in DataCite

Qualitative research among rare disease patients and advocates about their views on the international sharing of data and biospecimens for research.

Links

Where it is published

Documentation and papers

Catalogue records · 2

Topics

Stated by source
Sociology
From keywords
Social Science
Inferred from text
Disease 75%
Provenance · 1 source records, 11 field assertions
SourceKeyLast seenRaw
DataCite10.6084/m9.figshare.131877714 d agoJSON v1
FieldAssertionExtractorEvidence
access_levelsource · DataCiteconnector:datacite@1.0.0/data/attributes/rightsList
byte_sizesource · DataCiteconnector:datacite@1.0.0
concepts[disease].local:disease:diseaseenrichment · DataCitekeyword-concept-rules@1.0.0title+description (75%)
concepts[field].fos:sociologysource · DataCiteconnector:datacite@1.0.0
concepts[field].local:field:social-sciencemapping · DataCitevocabulary-mapper@1.0.0keywords['Sociology']
created_datesource · DataCiteconnector:datacite@1.0.0
descriptionsource · DataCiteconnector:datacite@1.0.0/data/attributes/descriptions
licensesource · DataCiteconnector:datacite@1.0.0/data/attributes/rightsList
publication_datesource · DataCiteconnector:datacite@1.0.0/data/attributes/dates
titlesource · DataCiteconnector:datacite@1.0.0/data/attributes/titles/0/title
updated_datesource · DataCiteconnector:datacite@1.0.0